positive living with MS
Please select your professional status below if you are a medical professional or click here to return to the msactivesource.co.uk website if you are not.
Clicking on the relevant title certifies that you are a healthcare professional accessing in your capacity as a healthcare professional.
MS Nurse...click here
Nurse...click here
Doctor...click here
MS Specialist...click here
You are leaving www.msactivesource.co.uk, a web site of Biogen Idec UK & Ireland. Links to all outside web sites are provided as a resource to our visitors. Biogen Idec accepts no responsibility for the content of other web sites.
We are not responsible for the content of external sites. Please read our legal disclaimer.
'Finding Quality information on the
Internet'.
A presentation produced by MS Active Source on how to find good quality Health and MS
information on the internet. This includes recommended techniques, tips and websites.
To download a copy of the presentation please click
here.
MS
Society
The UK MS Society site offers a lot of information on MS, living with the disease and
research. There is also a strong support aspect with an events section and message boards. Plus a
newsletter, live specialised online chats and email alerts. A good starting point for anyone with
MS.
MS
Trust
The Trust is one of the leading MS charities and as such offers information on the disease
with a strong research section. There is also information on education programmes, MS news and the
organisations events & campaigns. It features online live chats to an expert on specific MS
topics, such as complementary therapy, wellness and fatigue.
MS Resource
Centre
This website is run by people with MS for people with MS. It aims to be the online MS
resource. There are links through to personal MS websites, a famous people with MS section,
romance, poems, recipes and message boards. Plus an eclectic collection of sections in the ‘This
& That’ area.
MS
International Federation
A comprehensive, international and up-to-date information resource. It offers information on
the disease, latest research, people with MS and a strong section on living with MS. First and
foremost, however, it is a portal for information and therefore contains links to worldwide MS
Societies, support organisations, drug companies and research websites.
CHUMS
The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the
U.S. that focuses on supporting a child’s need to understand the disease when an adult in their
lives having MS affects them. It offers communication techniques and activities to promote better
understanding. The Activities Area offers ways to simulate various symptoms of MS. There is a
section on MS the Disease, as well as a message board for more ideas.
The
European MS Platform
This is a non-profit organisation based in Belgium, consisting of 29 National MS Societies.
Its aims are to act as a liaison for European political organisations and propose methods to
improve the lives of those with MS. The site explains what is happening in Europe in terms of MS in
a more political slant. It contains details on all the European MS events including conferences,
activities and projects.
Jooly’s
Joint
Jooly’s Joint is a UK community website. The founder, Julie Howell, set up the site, after
she was diagnosed with MS, as a way to learn about the disease. The site now has over 10,000
members and offers webcasts on aspects of the disease, several chat rooms, message boards and
discussion rooms, webpals, local meetings, news and fun and games. It is an opportunity to meet
people with MS all over the world.
Mutual Support
Since its conception with just three members, Mutual Support has grown and now the
membership, comprising of both retired and serving personnel, exceeds 200. The aim of the group is
exactly as the name implies, to provide Mutual Support to its membership. Recognized by the MS
Society UK and has charitable status under its umbrella.
Membership of Mutual Support is open to serving and former members of the Armed Forces or Reserves. Dependants and carers are also welcome as are other Service personnel who would like to help.
If you need our help and support please make contact with our Welfare Coordinator, Richard Ludford, who can be reached on 01666 824709, fax 01666 825076, at work on 01249 890381 Ext 6657(email Rludford@aol.com) or through Roger Langdon, Chairman, Mutual Support, 07801 419531. Confidentiality is guaranteed. If you are one of the unlucky ones, we are here to help.
My
Shoes
This is a campaign to help raise money for MS. It is a very upbeat site that encourages you
to sell your shoes for MS, buy shoes and talk about shoes. The Diary entries are a lot of fun and
worth a read. So whether you want to host a shoe party, find out about MS or how to become involved
the site can answer your questions.
MS Decisions
This site has been created with funding from the UK Department of Health as an independent
source of assistance and advice. It can help you in two different ways...
Firstly, it will help you to decide whether or not to embark on a course of treatment with
interferon beta, glatiramer acetate or natalizumab. These are licensed disease modifying drugs
(DMT's) which may slow the progression of your MS
Secondly, if you are considering treatment with a self-administered DMT (interferon beta or
glatiramer acetate), it has a decision aid to help you to decide, together with your neurologist
which of the four drugs currently available would be best for you, if you do decide to go
ahead.
Shift MS
Shift.ms is a community for young people affected by Multiple Sclerosis. Users can share,
support and interact with each other throughout the site. The site has over 1000 members ranging
from MS sufferers to people that just want to get involved.
Barnardos
This children’s charity can be useful in many ways, they can help children come to terms with
a family member having a disease such as MS, and they also provide books and other learning
tools. The section on
young
carers is especially interesting, look out for projects in your area or simply get in touch
using the contact us section.
Motability
Motability is the charity who has overall responsibility for the Motability Scheme; this
scheme enables disabled people to use their government-funded mobility allowances to obtain a new
car, powered wheelchair or scooter. This site explains how the scheme works and give you access to
pricing and local dealers.
Really Useful Things
This online shop stocks extremely useful products, ranging from sauce pans to shopping
trolleys.
The information and reference materials contained in this page are intended solely for the information of the reader. They should not be used for treatment purposes, but rather for discussion with the patient's own physician. MSActiveSource.co.uk (maintained by Tangent 90 Limited) does not control or edit these pages and can therefore not assume responsibility for their content. All visitors to the site agree to read and abide by the complete terms of the legal disclaimer.
The MS Society has over 350 local branches. Click on the map to find out if there is one in your area.
Supported by
This website is intended for use in Great Britain and Northern Ireland.
Please click here for msactivesource.ie
Page last updated: 08 Sep 2009
|
| This site complies to the HONcode standard for trustworthy health information: verify here. |