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Online Resources

We are not responsible for the content of external sites. Please read our legal disclaimer.

'Finding Quality information on the Internet'.

A presentation produced by MS Active Source on how to find good quality Health and MS information on the internet. This includes recommended techniques, tips and websites.
To download a copy of the presentation please click here.

MS Society
The UK MS Society site offers a lot of information on MS, living with the disease and research. There is also a strong support aspect with an events section and message boards. Plus a newsletter, live specialised online chats and email alerts. A good starting point for anyone with MS.

MS Trust
The Trust is one of the leading MS charities and as such offers information on the disease with a strong research section. There is also information on education programmes, MS news and the organisations events & campaigns. It features online live chats to an expert on specific MS topics, such as complementary therapy, wellness and fatigue.

Other Online Resources

MS Resource Centre
This website is run by people with MS for people with MS. It aims to be the online MS resource. There are links through to personal MS websites, a famous people with MS section, romance, poems, recipes and message boards. Plus an eclectic collection of sections in the ‘This & That’ area.

MS International Federation
A comprehensive, international and up-to-date information resource. It offers information on the disease, latest research, people with MS and a strong section on living with MS. First and foremost, however, it is a portal for information and therefore contains links to worldwide MS Societies, support organisations, drug companies and research websites.

CHUMS
The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the U.S. that focuses on supporting a child’s need to understand the disease when an adult in their lives having MS affects them. It offers communication techniques and activities to promote better understanding. The Activities Area offers ways to simulate various symptoms of MS. There is a section on MS the Disease, as well as a message board for more ideas.

The European MS Platform
This is a non-profit organisation based in Belgium, consisting of 29 National MS Societies. Its aims are to act as a liaison for European political organisations and propose methods to improve the lives of those with MS. The site explains what is happening in Europe in terms of MS in a more political slant. It contains details on all the European MS events including conferences, activities and projects.

Jooly’s Joint
Jooly’s Joint is a UK community website. The founder, Julie Howell, set up the site, after she was diagnosed with MS, as a way to learn about the disease. The site now has over 10,000 members and offers webcasts on aspects of the disease, several chat rooms, message boards and discussion rooms, webpals, local meetings, news and fun and games. It is an opportunity to meet people with MS all over the world.

Mutual Support
Since its conception with just three members, Mutual Support has grown and now the membership, comprising of both retired and serving personnel, exceeds 200. The aim of the group is exactly as the name implies, to provide Mutual Support to its membership. Recognized by the MS Society UK and has charitable status under its umbrella. 

Membership of Mutual Support is open to serving and former members of the Armed Forces or Reserves.   Dependants and carers are also welcome as are other Service personnel who would like to help.

If you need our help and support please make contact with our Welfare Coordinator, Richard Ludford, who can be reached on 01666 824709, fax 01666 825076, at work on 01249 890381 Ext 6657(email Rludford@aol.com) or through Roger Langdon, Chairman, Mutual Support, 07801 419531. Confidentiality is guaranteed. If you are one of the unlucky ones, we are here to help.

My Shoes
This is a campaign to help raise money for MS. It is a very upbeat site that encourages you to sell your shoes for MS, buy shoes and talk about shoes. The Diary entries are a lot of fun and worth a read. So whether you want to host a shoe party, find out about MS or how to become involved the site can answer your questions.

MS Decisions
This site has been created with funding from the UK Department of Health as an independent source of assistance and advice. It can help you in two different ways...

Firstly, it will help you to decide whether or not to embark on a course of treatment with interferon beta, glatiramer acetate or natalizumab. These are licensed disease modifying drugs (DMT's) which may slow the progression of your MS

Secondly, if you are considering treatment with a self-administered DMT (interferon beta or glatiramer acetate), it has a decision aid to help you to decide, together with your neurologist which of the four drugs currently available would be best for you, if you do decide to go ahead.

Shift MS
Shift.ms is a community for young people affected by Multiple Sclerosis. Users can share, support and interact with each other throughout the site. The site has over 1000 members ranging from MS sufferers to people that just want to get involved.

Barnardos
This children’s charity can be useful in many ways, they can help children come to terms with a family member having a disease such as MS, and they also provide books and other learning tools.  The section on young carers is especially interesting, look out for projects in your area or simply get in touch using the contact us section.

Motability
Motability is the charity who has overall responsibility for the Motability Scheme; this scheme enables disabled people to use their government-funded mobility allowances to obtain a new car, powered wheelchair or scooter. This site explains how the scheme works and give you access to pricing and local dealers.

Really Useful Things
This online shop stocks extremely useful products, ranging from sauce pans to shopping trolleys.



The information and reference materials contained in this page are intended solely for the information of the reader. They should not be used for treatment purposes, but rather for discussion with the patient's own physician. MSActiveSource.co.uk (maintained by Tangent 90 Limited) does not control or edit these pages and can therefore not assume responsibility for their content. All visitors to the site agree to read and abide by the complete terms of the legal disclaimer.

 

Did you know?

The MS Society has over 350 local branches. Click on the map to find out if there is one in your area.

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Page last updated: 08 Sep 2009

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