Living Library
Online Resources for Multiple Sclerosis
We are not responsible for the content of external sites. Please read our legal disclaimer.
‘
Finding quality information Health on the
Internet’.
A presentation produced by MSActivesource on how to find quality Health and MS information on
the internet. Recommended techniques, tips and websites.
To download a copy of the presentation please click
here.
MS Society
The UK MS Society site offers a lot of information on MS, living with the disease and
research. There is also a strong support aspect with an events section and message boards. Plus a
newsletter, live specialised online chats and email alerts. A good starting point for anyone with
MS.
MS International Federation
A comprehensive, international and up-to-date information resource. It offers information on
the disease, latest research, people with MS and a strong section on living with MS. First and
foremost, however, it is a portal for information and therefore contains links to worldwide MS
Societies, support organisations, drug companies and research websites.
MS Trust
The Trust is one of the leading MS charities and as such offers information on the disease
with a strong research section. There is also information on education programmes, MS news and the
organisations events & campaigns. It features online live chats to an expert on specific MS
topics, such as complementary therapy, wellness and fatigue.
National (US) MS Society
This is the American MS Society’s website. It offers information on the disease, disease
modifying drug therapies, news and latest research. Plus online webcasts by experts on aspects of
the disease, publications and discussion boards.
CHUMS
The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the
U.S. that focuses on supporting a child’s need to understand the disease when they are affected by
an adult in their lives having MS. It offers communication techniques and activities to promote
better understanding. The Activities Area offers ways to simulate various symptoms of MS. There is
a section on MS the Disease, as well as a message board for more ideas.
MS Education Network
The site is basically a discussion board. It brings together people suffering from different
diseases and experts in those fields to be interviewed. The MS section has various topics discussed
including MS basics, sorting fact from fiction, symptomatic therapy and treatment options and
cognitive and emotional issues. With each discussion you can hear a replay, (Real Player and
Windows Media) read the interview by section or download the whole transcript (PDF format).
Patient Education Institute
This site offers an online presentation on MS, with slides and audio, without requiring any
special players. Although it gives American specific data in some areas, it is a very visual way to
understand the disease. The areas discussed are anatomy, the disease, causes, symptoms, diagnosis
and treatment.
InfoSci
Infosci which was set up in 1994 was the first website for MS. It brings together a series
of links and articles on a huge range of issues from MS the disease, personality changes, diet,
exercise and travel.
US National Library of
Medicine
This online library has a database that covers worldwide literature since 1966. Over 4000
journals are indexed (PubMed) in fields of medicine, nursing diseases and treatments. There is a
lot of information on MS the disease, symptoms and treatment, especially if you use the site’s
powerful search engine.
Understanding MS
A mostly videobased library covering all areas of MS including personal perspectives, the
disease, its treatment and combination therapy. There are also transcripts of all the webcasts plus
articles and links.
The European MS Platform
This is a non-profit organisation based in Belgium, consisting of 29 National MS Societies.
Its aims are to act as a liaison for European political organisations and propose methods to
improve the lives of those with MS. The site explains what is happening in Europe in terms of MS in
a more political slant. It contains details on all the European MS events including conferences,
activities and projects.
Department of Works & Pensions
The government online department for Works and Pensions that gives information on claiming
allowances and benefits, with downloadable claim forms (PDF format).
Other Online Resources
MS Resource Centre
This website is run by people with MS for people with MS. It aims to be the online MS
resource. There are links through to personal MS websites, a famous people with MS section,
romance, poems, recipes and message boards. Plus an eclectic collection of sections in the ‘This
& That’ area.
Jooly’s Joint
Jooly’s Joint is a UK community website. The founder, Julie Howell, set up the site, after
she was diagnosed with MS, as a way to learn about the disease. The site now has over 10,000
members and offers webcasts on aspects of the disease, several chat rooms, message boards and
discussion rooms, webpals, local meetings, news and fun and games. It is an opportunity to meet
people with MS all over the world.
MS Crossroads
A Finnish website that has a comprehensive set of worldwide internet sets. There are links
to news, research, drug companies, support and alternative therapy sites. A great source of
information.
MSRC
MSRC is about you, whether you have been diagnosed for years or not, or if you are a
relative, friend, carer, a professional in the field, wondering or just plain interested. The aim
of MSRC is to act as a one-stop service for anyone affected by MS, hence our motto of 'Our number
is all you need'.
Whether it is those with a diagnosis or expecting one, family, friends, employers, work
colleagues, professionals in the field or those just with an interest, we aim to provide answers
and/or support that is accurate and appropriate.With a small team of committed and experienced
staff we treat each enquiry with genuine empathy whilst tailoring the response to the needs of the
caller.
http://www.mutualsupport.org.uk/
Since its conception with just three members, Mutual Support has grown and now the
membership, comprising of both retired and serving personnel, exceeds 200. The aim of the group is
exactly as the name implies, to provide Mutual Support to its membership. Recognized by the MS
Society UK and has charitable status under its umbrella.
Membership of Mutual Support is open to serving and former members of the Armed Forces or
Reserves. Dependants and carers are also welcome as are other Service personnel who
would like to help.
If you need our help and support please make contact with our Welfare Coordinator, Richard
Ludford, who can be reached on 01666 824709, fax 01666 825076, at work on 01249 890381 Ext
6657(email Rludford@aol.com) or through Roger Langdon, Chairman, Mutual Support, 07801 419531.
Confidentiality is guaranteed. If you are one of the unlucky ones, we are here to help.
The Charities Lottery
https://www.playmonday.com/CF/games/lotto.do
This is similar to the National Lottery but is a lotto game where the money goes to
charities. Each week 5 charities are picked and 30p from every ticket goes towards them.
My Shoes
http://www.myshoes.org.uk/
This is a campaign to help raise money for MS. It is a very upbeat site that encourages you
to sell your shoes for MS, buy shoes and talk about shoes. The Diary entries are a lot of fun and
worth a read. So whether you want to host a shoe party, find out about MS or how to become involved
the site can answer your questions.
Pharma-Lexicon
http://www.pharma-lexicon.com/
This site is an online dictionary of over 200,000 medical, pharmaceutical, biomedical and
healthcare acroynms and abbreviations.
The information and reference materials contained in the 'Living Library' are intended solely for the information of the reader. They should not be used for treatment purposes, but rather for discussion with the patient's own physician. MSActiveSource.co.uk (maintained by Vision360 Limited) does not control or edit these pages and can therefore not assume responsibility for their content. All visitors to the site agree to read and abide by the complete terms of the legal disclaimer.