Living With MS
Are You a Carer of Somebody with Multiple Sclerosis?
We are not responsible for the content of external sites. Please read our legal disclaimer.
Knowing someone with MS may mean that you find yourself in a new role as a carer. This role, although vital to many people, has its own problems and difficulties.
There are 6.8 million adults in Britain who give their time and care on an unpaid basis to friends, family or neighbours otherwise unable to manage without their carer’s help. Many spend more than 20 hours a week on caring tasks and are often the main support for the person they are looking after (usually a spouse or partner, or son or daughter, in the same household) (refL7).
The Carers Speak Out survey, part of the Government’ National Strategy for Carers, asked 3,800 carers about their experience of looking after people. This report showed that:
- Carers need good sources of information, help and support.
-
Healthcare professionals, including doctors, nurses and other staff, need to recognise the role that carers play. Indeed, four out of 10 carers surveyed felt that they had little influence over the services provided (refL7).
Taking Care of the Carer
Giving care has its own impact on the carer. The sheer hard work of caring and the effect it can have on the carer’s own physical and mental health can be exhausting. The Carers Speak Out Report found that:
- Four out of 10 carers have a disability or long-term illness.
- Eight of 10 carers said that their own health was affected by their caring role.
-
Nine out of 10 carers reported stress, anxiety, depression or loss of sleep due to their role as a carer (refL7).
(A summary of the Carers Speak Out report is available at www.carers.org. You can also obtain a copy of the whole report at the same site.)
These ill effects can have a tremendous impact on the carer’s own relationships, whether these are with the person with MS or with other friends or family members. For this reason, it’s vital that carers are occasionally able to take a break. This might be for a couple of hours to go shopping or for a short holiday to recharge their batteries.
The following organisations are good sources of information and support, including short breaks and financial help, for carers.
You will also find useful information on
Living with MS elsewhere
on MSActiveSource.
A Personal Message from Laurence Llewelyn-Bowen and his Wife, Jackie
‘MS can have an enormous impact on a family. We know since MS has affected both our mothers. Thankfully access to treatment for MS is improving. There is a greater understanding of how to manage and slow the progression of MS and there is a wealth of information for patients and their families. But there is still a long way to go, and we are committed to doing everything we can to raise awareness and to help improve the situation for all MS patients (refL8).'