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Living With MS

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• Managing MS
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• Finding support
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  • Intro to eNewsfeature
  • Invisible symptoms
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  • Children
  • Pregnancy
  • Partner with MS
  • Books and pamphlets
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  • Exercise and MS
  • Types of exercise
  • Diet and MS

eFeature - Children

MS and Children

If you have children and a member of the family with MS then this feature from the MS International Federation is a must read. Dr “Sandy” Burnfield a consultant in Child, Adolescent and family Psychiatry looks at the issues that arise when someone in the family has MS and how to try and tackle these. The key it seems is listening and participation. But the article goes much deeper and asks question like how it changes a relationship over time, the positive and negative impacts, how puberty changes things and what symptoms worry children. It is an excellent feature and covers a wide variety of issues in great detail.

Being a Father with MS

An amusing article with a serious undertone! We follow Gary through his attempts to discuss his MS with his five-year-old daughter with some humorous outcomes. It is a heart-warming story that offers gentle advice and humour.

Parent With MS, Toddler on board

This is a special feature from Inside MS, the American MS Society’s magazine.  It focuses on the issues a parent faces with their toddler-aged children.  There are practical hints and tips on a variety of subjects, including anti-exhaustion measures, pain management and establishing limits.  Parents and a clinical psychologist give the advice.

Online Support

CHUMS

The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the U.S. that focuses on supporting a child’s need to understand the disease when an adult in their lives having MS affects them. It offers communication techniques and activities to promote better understanding. The activities area offers ways to simulate various symptoms of MS. There is also a section on MS the disease as well as a message board for more ideas.

Let’s Talk MS – for Kids

A character called ‘Myelin’ who aims to help children learn about Multiple Sclerosis and make sure they have fun too introduces the site. There is an explanation of MS, how it can make you feel, answers to scary questions and a look at the people who help care for someone with MS, such as a nurse or neurologist. A glossary, games, message board and chat room are also included on the site.

Let’s Talk MS – For Teenagers

The aim of this site is for teenagers who are living with MS to learn about the disease and also communicate with other teens in a similar situation. Therefore there is a message board, chat room, a description of MS and personal stories from subscribers. But there is also sections on how finding out a parent has MS makes you feel and how to cope with these feelings and the subsequent changes. Through its articles it encourages teenagers to communicate and offers other ways to find support.

Books, magazines and pamphlets

The Young Person's Guide to MS

This is a new booklet produced by the MS Trust aimed at young people, aged 10 - 15, who have a parent with MS.  It aims to answer some questions they may have and offers advice on coping with a parent with MS.

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