MS Active Source

Newly Diagnosed

• Introduction
• Facts about MS
• What will happen to me
• About MS
  • About MS
  • Understanding MS
  • How is MS diagnosed?
  • Common symptoms
  • Invisible symptoms
  • MS professionals
  • Pregnancy and MS
  • Links
• Treatments for MS
  • Treatments for MS
  • Understanding MS
  • Questions for your doctor
  • Links
• Day to day
  • Telling family and friends
  • Changing lifestyles
  • Stories
  • MS and work
  • Staying healthy
  • Healthy living
  • Positive living
  • Exercise and MS
• Partners
  • Partners
  • Partner with MS
  • For your doctor
  • Links
• You are not alone
  • You are not alone
  • MS resources
  • Links
  • Support groups
• FAQ
  • FAQ
  • Links
• Links

MS Resources

We are not responsible for the content of external sites. Please read our legal disclaimer.

' Finding quality information on the Internet'.

A presentation produced by MS Active Source on how to find good quality information on Health and MS on the internet.  Recommended techniques, tips and websites.
To download a copy of the presentation please click here.

MS Society
The UK MS Society site offers a lot of information on MS, living with the disease and research. There is also a strong support aspect with an events section and message boards. Plus a newsletter, live specialised online chats and email alerts. A good starting point for anyone with MS.

MS Trust
The Trust is one of the leading MS charities and as such offers information on the disease with a strong research section. There is also information on education programmes, MS news and the organisations events & campaigns. It features online live chats to an expert on specific MS topics, such as complementary therapy, wellness and fatigue.

Multiple Sclerosis Resource Centre
MSRC is about you, whether you have been diagnosed for years or not, or if you are a relative, friend, carer, a professional in the field, wondering or just plain interested. The aim of MSRC is to act as a one-stop service for anyone affected by MS, hence our motto of 'Our number is all you need'.
Whether it is those with a diagnosis or expecting one, family, friends, employers, work colleagues, professionals in the field or those just with an interest, we aim to provide answers and/or support that is accurate and appropriate. With a small team of committed and experienced staff we treat each enquiry with genuine empathy whilst tailoring the response to the needs of the caller.

MS International Federation
A comprehensive, international and up-to-date information resource. It offers information on the disease, latest research, people with MS and a strong section on living with MS. First and foremost, however, it is a portal for information and therefore contains links to worldwide MS Societies, support organisations, drug companies and research websites.

National (US) MS Society
This is the American MS Society’s website. It offers information on the disease, disease modifying drug therapies, news and latest research. Plus online webcasts by experts on aspects of the disease, publications and discussion boards.

CHUMS
The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the U.S. that focuses on supporting a child’s need to understand the disease when they are affected by an adult in their lives having MS. It offers communication techniques and activities to promote better understanding. The Activities Area offers ways to simulate various symptoms of MS. There is a section on MS the Disease, as well as a message board for more ideas.

MS Education Network
The site is basically a discussion board. It brings together people suffering from different diseases and experts in those fields to be interviewed. The MS section has various topics discussed including MS basics, sorting fact from fiction, symptomatic therapy and treatment options and cognitive and emotional issues. With each discussion you can hear a replay, (Real Player and Windows Media) read the interview by section or download the whole transcript (PDF format).

The European MS Platform
This is a non-profit organisation based in Belgium, consisting of 29 National MS Societies. Its aims are to act as a liaison for European political organisations and propose methods to improve the lives of those with MS. The site explains what is happening in Europe in terms of MS in a more political slant. It contains details on all the European MS events including conferences, activities and projects.

Department of Works & Pensions
The government online department for Works and Pensions that gives information on claiming allowances and benefits, with downloadable claim forms (PDF format).

Other Online Resources

Jooly’s Joint
Jooly’s Joint is a UK community website. The founder, Julie Howell, set up the site, after she was diagnosed with MS, as a way to learn about the disease. The site now has over 10,000 members and offers webcasts on aspects of the disease, several chat rooms, message boards and discussion rooms, webpals, local meetings, news and fun and games. It is an opportunity to meet people with MS all over the world.

MS Crossroads
A Finnish website that has a comprehensive set of worldwide internet sets. There are links to news, research, drug companies, support and alternative therapy sites. A great source of information.

Mutual Support
Since its conception with just three members, Mutual Support has grown and now the membership, comprising of both retired and serving personnel, exceeds 200. The aim of the group is exactly as the name implies, to provide Mutual Support to its membership. Recognized by the MS Society UK and has charitable status under its umbrella.

Membership of Mutual Support is open to serving and former members of the Armed Forces or Reserves.   Dependants and carers are also welcome as are other Service personnel who would like to help.

If you need our help and support please make contact with our Welfare Coordinator, Richard Ludford, who can be reached on 01666 824709, fax 01666 825076, at work on 01249 890381 Ext 6657(email Rludford@aol.com) or through Roger Langdon, Chairman, Mutual Support, 07801 419531. Confidentiality is guaranteed. If you are one of the unlucky ones, we are here to help.

My Shoes
This is a campaign to help raise money for MS. It is a very upbeat site that encourages you to sell your shoes for MS, buy shoes and talk about shoes. The Diary entries are a lot of fun and worth a read. So whether you want to host a shoe party, find out about MS or how to become involved the site can answer your questions.

MS Research
A Charity dedicated to research and extending knowledge about MS with the aim of providing better treatment and hastening a cure.

MS First
MS First supports the Bristol Research Unit, which is based within the United Bristol Healthcare NHS Trust and associated with the University of Bristol. 'First' stands for Further Information Research, Support and Training in MS. The aim is to look for new ways to treat the disease. There is information on the studies that have been or are currently being carried out, such as the emotional impact of MS and the MS Tremor Project.

The European Charcot Foundation
This is a European base non-profit organisation that consists of 500 institution and 950 investigators. Their aim is to use a European dimension in MS research through European co-operation. The site offers details on the events including the latest symposium and the lectures given.

Stem Cells and the Future of MS Research

MS Trust
On 6 September 2006, the MS Trust hosted an event that brought together leading figures in MS in the UK to discuss the state of research into the condition and the role of stem cell therapies in future treatments.

Human Protein from Yeast
Genetic engineers have found a way to make human proteins using a humble yeast. The technique could open a path for new ways to brew sophisticated medicines in huge quantities.

Quackwatch
This is a non-profit organisation based in America, but with worldwide volunteers, whose main aim is to combat health-related frauds, myths, fads, and fallacies.  The website was launched in 1996 to help investigate questional claims, attack misleading advertising on the internet, advise quackery victims and improve the quality of health information on the internet.

MS Therapy Centres
The site is the home of a group of self-help therapy centres offering assistance for people with MS through a range of drug-free symptom management and support. Therefore the site offers information on various types of complementary therapies, such as oxygen therapy. Plus information on the disease, latest research, a newsletter and details on your nearest centre.

The information and reference materials contained in this page are intended solely for the information of the reader. They should not be used for treatment purposes, but rather for discussion with the patient's own physician. MSActiveSource.co.uk (maintained by Cordovan Limited) does not control or edit these pages and can therefore not assume responsibility for their content. All visitors to the site agree to read and abide by the complete terms of the legal disclaimer.

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