Newly Diagnosed
Online Resources
We are not responsible for the content of external sites. Please read our legal disclaimer.
'Finding quality
Health
information on the Internet'
.
A presentation produced by MSActivesource on how to find quality Health and MS information on
the internet. Recommended techniques, tips and websites.
To download a copy of the presentation please click
here.
MS Society
The UK MS Society site offers a lot of information on MS, living with the disease and
research. There is also a strong support aspect with an events section and message boards. Plus a
newsletter, live specialised online chats and email alerts. A good starting point for anyone with
MS.
MS International Federation
A comprehensive, international and up-to-date information resource. It offers information on
the disease, latest research, people with MS and a strong section on living with MS. First and
foremost, however, it is a portal for information and therefore contains links to worldwide MS
Societies, support organisations, drug companies and research websites.
MS Trust
The Trust is one of the leading MS charities and as such offers information on the disease
with a strong research section. There is also information on education programmes, MS news and the
organisations events & campaigns. It features online live chats to an expert on specific MS
topics, such as complementary therapy, wellness and fatigue.
CHUMS
The Children’s Hope for Understanding MS is the only MS based non-profit organisation in the
U.S. that focuses on supporting a child’s need to understand the disease when they are affected by
an adult in their lives having MS. It offers communication techniques and activities to promote
better understanding. The Activities Area offers ways to simulate various symptoms of MS. There is
a section on MS the Disease, as well as a message board for more ideas.
US National Library of
Medicine
This online library has a database that covers worldwide literature since 1966. Over 4000
journals are indexed (PubMed) in fields of medicine, nursing diseases and treatments. There is a
lot of information on MS the disease, symptoms and treatment, especially if you use the site’s
powerful search engine.
Understanding MS
A mostly videobased library covering all areas of MS including personal perspectives, the
disease, its treatment and combination therapy. There are also transcripts of all the webcasts plus
articles and links.
The European MS Platform
This is a non-profit organisation based in Belgium, consisting of 29 National MS Societies.
Its aims are to act as a liaison for European political organisations and propose methods to
improve the lives of those with MS. The site explains what is happening in Europe in terms of MS in
a more political slant. It contains details on all the European MS events including conferences,
activities and projects.
Department of Works & Pensions
The government online department for Works and Pensions that gives information on claiming
allowances and benefits, with downloadable claim forms (PDF format).
Other Online Resources
Jooly’s Joint
Jooly’s Joint is a UK community website. The founder, Julie Howell, set up the site, after
she was diagnosed with MS, as a way to learn about the disease. The site now has over 10,000
members and offers webcasts on aspects of the disease, several chat rooms, message boards and
discussion rooms, webpals, local meetings, news and fun and games. It is an opportunity to meet
people with MS all over the world.
MS Resource Centre
MSRC is about you, whether you have been diagnosed for years or not, or if you are a
relative, friend, carer, a professional in the field, wondering or just plain interested. The aim
of MSRC is to act as a one-stop service for anyone affected by MS, hence our motto of 'Our number
is all you need'.
Whether it is those with a diagnosis or expecting one, family, friends, employers, work
colleagues, professionals in the field or those just with an interest, we aim to provide answers
and/or support that is accurate and appropriate.With a small team of committed and experienced
staff we treat each enquiry with genuine empathy whilst tailoring the response to the needs of the
caller.
Pharma-Lexicon
http://www.pharma-lexicon.com/
This site is an online dictionary of over 200,000 medical, pharmaceutical, biomedical and
healthcare acroynms and abbreviations.
The information and reference materials contained in this page are intended solely for the information of the reader. They should not be used for treatment purposes, but rather for discussion with the patient's own physician. MSActiveSource.co.uk (maintained by Vision360 Limited) does not control or edit these pages and can therefore not assume responsibility for their content. All visitors to the site agree to read and abide by the complete terms of the legal disclaimer.